The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.
Mission statement
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
History
The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases". The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), United Way of America, and the Robert Johnson Foundation.
Areas of emphasis Research Public Health Education Professional Health Education Patient Services Community Services Support to Global Organizations and Practitioners
Events The Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars each summer. The inaugural walk was held on September 6, 2014, at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and more. The Sickle Cell Disease Annual National Convention is held annually during October. The event will feature themed experience, with prizes, awards, auctions and educational sessions.
Notable supporters
Tionne 'T-Boz' Watkins - The National Celebrity Spokesperson for the SCDAA. Tiki Barber - The former NFL running back has sickle cell disease and does his part educating others. Prodigy - Hip Hop star promotes sickle cell awareness at different events, including the 2011 National Convention. Ryan Clark - NFL Super Bowl champion with the Pittsburgh Steelers. Devin McCourty and Ryan McCourty - Twins fight Sickle Cell Disease with Tackle Sickle Cell Organization. Kier "Junior" Spates - SCDAA National Celebrity Ambassador Larenz Tate - Actor is passionate about sickle cell awareness. Santonio Holmes - Runs benefit for son with sickle cell disease.
Branches and affiliates
Alabama North Alabama Sickle Cell Foundation - Huntsville SCDAA - West Alabama Chapter - Northport SCDAA Central Foundation Central Alabama - Birmingham SCDAA - Mobile Chapter Sickle Cell Foundation of the River Region - Montgomery Southeast Alabama Sickle Cell Association, Inc. - Tuskegee
California Cayenne Wellness Center - Glendale
Colorado Colorado Sickle Cell Association - Denver
Connecticut Michelle's House / SCDAA Connecticut - Bridgeport/New Haven
Delaware Tova Community Health - Wilmington
Florida Levi Long Sickle Cell Association, Inc. - Daytona Beach Sickle Cell Association of Orange, Osceola, and Seminole Counties SCDAA of Escambia & Santa Rosa Counties - Pensacola SCDAA - Dade County Chapter, Inc. - Miami SCDAA - St. Petersburg Chapter Sickle Cell Association of Hillsborough County - Tampa Sickle Cell Disease Association of Broward County - Ft. Lauderdale Sickle Cell Disease Association of Florida - Tampa Sickle Cell Foundation of Palm Beach County & Treasure Coast Inc. - West Palm Beach Sickle Cell Foundation, Inc. - Tallahassee Sickle Cell Medical Advocacy, Inc. - Orlando
Georgia Sickle Cell Foundation of Georgia, Inc. - Atlanta
Illinois Sickle Cell Disease Association of Illinois - Chicago Sick Cells - Lisle
Indiana Martin Center, Inc. - Indianapolis
Kansas Uriel Owens Sickle Cell Disease Association of the Midwest - Kansas City
Louisiana Etta Pete Sickle Cell Anemia Foundation - Lake Charles Northeast Louisiana Sickle Cell Anemia Foundation - Monroe SCDAA - Northwest Louisiana - Shreveport Sickle Cell Anemia Resource Foundation - Alexandria Sickle Cell Association of South Louisiana - Baton Rouge
Maryland Association for the Prevention of Sickle Cell Anemia of Harford/Cecil Counties and Eastern Shore Maryland Sickle Cell Disease Association, Inc. (MSCDA)
Massachusetts Massachusetts Sickle Cell Association - Dorchester
Michigan SCDAA Michigan - Detroit
Minnesota Sickle Cell Foundation of Minnesota - Minneapolis
Missouri Sickle Cell Association of St. Louis - St. Louis
Nevada Bridging the Gap - Adult Sickle Cell Disease Foundation of Nevada - Las Vegas
New Jersey The Sickle Cell Association of New Jersey, Inc. - Newark
New Mexico The Sickle Cell Council of New Mexico - Albuquerque
New York Falling Angels Sickle Cell Foundation - Garnerville New York State Sickle Cell Advocacy Network, Inc. - Queens Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn
North Carolina Bridges Pointe Sickle Cell Foundation - Durham Piedmont Health Services and Sickle Cell Agency - Greensboro
Ohio SCDAA - Ohio Sickle Cell & Health Association - Columbus
Oklahoma Supporters of Families With Sickle Cell Disease, Inc. - Tulsa
Oregon Sickle Cell Anemia Foundation of Oregon - Portland
Pennsylvania Children's Sickle Cell Foundation, Inc. - Pittsburgh SCDAA - Philadelphia/Delaware Valley Chapter The South Central PA Sickle Cell Council - Harrisburg
South Carolina James R. Clark Memorial Sickle Cell Foundation - Columbia
Tennessee Sickle Cell Foundation of Tennessee - Memphis
Texas Sickle Cell Association of Houston - Houston Sickle Cell Association of Texas Marc Thomas Foundation - Austin
Virginia Sickle Association, Inc. - Norfolk
Wisconsin Sickle Cell Warriors of Wisconsin
References
External links