A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks. __TOC__ Classification Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.
Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease. Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.
List of biobanks Biobank Affiliation Focus Type Location Founding NotesAll of Us Population non-profit United StatesAcutelinesUniversity of Groningen & University Medical Centre GroningenAcute illnessnon-profitNetherlands2020 Autism Genetic Resource Exchange Autism Speaks Autism non-profit North America and Asia Avon Longitudinal Study of Parents and Children University of Bristol non-profit United Kingdom 1990 BioBank Graz Medical University of Graz non-profit Austria Vilnius Santaros Klinikos Biobank Vilnius University Hospital Santaros Klinikos non-profit Lithuania BioBank Japan RIKEN, University of Tokyo Population, personalized medicine non-profit Japan 2003 Canadian Biosample Repository University of Alberta non-profit Canada CARTaGENE biobank Centre hospitalier universitaire Sainte-Justine non-profit Quebec 2009 Cooperative Human Tissue Network Cancer government USA 1987 Coriell Institute for Medical Research Genetic Disorders, rare diseases, Stem Cells non-profit United States 1953DeCODE genetics commercial IcelandEstonian Genome ProjectUniversity of Tartu non-profit Estonia 2000 EuroBioBank Rare diseases non-profit EuropeFINBBPopulationnon-profitFinlandFinnGenPopulation, disease focusedpublic-privateFinland2017 Generation Scotland NHS Scotland government Scotland 1999 Genomics EnglandRare diseases, cancerpublic-privateEngland2013 HUNT Biobank Norwegian University of Science and Technology non-profit Norway 2002Integrated Biobank of LuxembourgLuxembourg Institute of HealthCancer, immunologyLuxembourgInterdisziplinäre Biomaterial- und Datenbank WürzburgUniversity of Würzburg & Universitätsklinikum Würzburgpublic agencyWürzburg, Germany2013 Kaiser Permanente Research Bank Kaiser Permanente Population United States 2016 LifelinesUniversity of Groningen & University Medical Centre GroningenHealthy agingnon-profitGroningen, The Netherlands2006 Million Veterans Project United States Department of Veterans Affairs American veterans non-profit United States MyCode Geisinger Health System Electronic health records, personalized medicine commercial Pennsylvania, United States 2007 nPOD University of Florida, JDRF Diabetes non-profit United States 2007 Open BiobankThe NeuroNeurologynon-profitCanada2015PATH Biobank Breast cancer non-profit Germany 2002Penn Medicine BioBankUniversity of PennsylvaniaMedical-academicnon-profitPennsylvania, United States2008Plasma Services GroupAutoimmune, Infectious, Coagulation, DiagnosticscommercialUnited States2017Sapien BiosciencesApollo Hospitals & Saarum InnovationsPopulation, with special focus on tailoring treatment for CancerprivateIndia (headquartered in Hyderabad)2012Research centre of the Montreal Mental Health InstituteMental healthnon-profitCanada (Quebec)2012 The Malaysian Cohort National University of Malaysia non-profit Malaysia 2003Tohoku Medical Megabank ProjectTohoku University, Iwate Medical UniversityPopulation, Birth and Three-Generationnon-profitJapan2012 UK Biobank non-profit United Kingdom 2006Biobank SwedenHealth and Social Care InspectorateCollaborative biobank infrastructure (nearly 250 biobanks)governmentSweden2017
References
External links List of biobanks